SHC is an initiative at national level to work very pro-actively in partnership/association with various other organisations, individuals and governments, both at the central as well as state levels and to ensure safe, affordable and ethical treatment for persons suffering from hemophilia all over India.
We at the Society for Hemophilia Care, help the persons suffering from hemophilia- a serious bleeding disorder by providing them support for treatment, education, economic rehabilitation. Presently we are working in Delhi , Agra , Jammu , Jaipur, Bangalore , Patna , Patiala , Srinagar , Trivandrum and Hubli.
SHC Vision
Hemophilia Care is within reach regardless of ability to pay
SHC Mission is EASY :
Education & Awareness about Hemophilia, its impact and prevention. Encourage the environment to prevent HIV/AIDS, Hepatitis B & C in persons having hemophilia. Prevention of disability in such persons;
Advocacy for safer, ethical and affordable Hemophilia Care. Focusing on the need and bringing a positive change in the attitude of the government authorities and having them recognise the need of providing Hemophilia Care;
Support partnerships in making SHC vision a reality by 2015;
Youth empowerment and making them independent.
A. Executive Council of SHC:
Shri Jittender Kapoor, Chairman, SHC:
Past Cabinet Secretary of the Lions' Clubs Delhi and Punjab Region
Founder Member & Secretary (Finance), Lions' Hospital & Research Centre, New Friends Colony, New Delhi
Ms. Ranjana Ramchander, Vice Chairman, SHC:
A painter by profession but now fully involved in Hemophilia care in Karnataka.
Very strong in advocacy with policy makers.
Shri Jagdish Sharma, Secretary (Finance):
Lecturer, J & K State.
Founder of Hemophilia Society of militancy prone state of J & K
Shri George Tharakan, Member:
Founder of Hemophilia Movement in India & Kerala
A retired Bank Officer Trivendrum, Kerala
Shri. Kumar Shailendra, Member:
Operating from BEMARU states like Bihar
Secretary, Hemophilia Society of Bihar
Ms. Richa Mohan, Member:
Member, WFH Psycho-social committee,leading Psychologist. Working for several NGOs
Ms. Rajani Tikoo, Member:
Central Govt. Officer in Mumbai
B. Executive Director :
Shri Vijay Kaul:
Having illustrious career credentials. Worked for Organisations like World Bank, DANIDA: A Govt. of Denmark Agency, WFH, Canada. Govt. of India, HIV/AIDS Law Network in Japan, Pakistan Patients Welfare Society in Pakistan, Yayasen Foundation of Indonesia in Indonesia, Bayer Biologicals, USA.
